The Yorkshire Specialist Register of Cancer in Children and Young People (YSRCCYP) is a regional population-based register that contains detailed demographic and clinical information on children and young adults (aged 0 – 39) that have been diagnosed with cancer in the Yorkshire region since 1974.
A demographic breakdown can be found in the following table:
The YSRCCYP supports a programme of research investigating the epidemiology of cancer in young people and describing outcomes for long-term survivors.
Given the sensitive nature of the data we collect, we adhere to strict data protection protocols. For more information on how we handle your personal data, and the right of individuals and family members to opt-out of data collection, please visit our Patients and Survivors section.
The YSRCCYP covers Yorkshire and the Humber with a population of 5 million people. The area comprises a range of urban and rural communities with a significant ethnic minority population resident in parts of West Yorkshire.
The Candlelighters Trust has extended core funding for the YSRCCYP, enabling data collection and epidemiological research to continue until May 2025.
The Yorkshire Register research team is led by Prof. Richard Feltbower and Prof. Adam Glaser, you can find out more information on the YSRCCYP team on the ‘Meet the Team’ page.