DATA-CAN is the UK’s Health Data Research Hub for Cancer with the goal of improving access to cancer data for research by making it easier for researchers and others to discover and, where appropriate, access cancer data.
Northern Region Young Persons’ Malignant Disease Registry
The Northern Region Young Persons’s Malignant Disease Registry is a paediatric cancer registry covering north Cumbria and the north east of England, containing patient data since 1968.
West Midlands Regional Children’s Tumour Registry
The West Midlands Regional Children’s Tumour Registry is a specialist paediatric cancer registry containing patient data from 1957 onwards.
Children’s Cancer and Leukaemia Group
The Children’s Cancer and Leukaemia Group (CCLG) are a children’s cancer charity and the UK’s professional association for those involved in the treatment and care of children with cancer. The CCLG has issued specific Covid-19 guidance for children and young people with cancer undergoing treatment. The YSRCCYP has also supported the UK Paediatric Oncology Coronavirus Monitoring Project in conjunction with the CCLG.
National Disease Registration Service
National Disease Registration Service is manages the National Cancer Registration and Analysis Service (NCRAS). NCRAS aims to collect data on all cases of cancer that occur in people living in England. The data is used to support public health, healthcare and research. NCRAS publishes a range of cancer statistics and information at www.cancerdata.nhs.uk.
The United Kingdom and Ireland Association of Cancer Registries (UKIACR)
The United Kingdom and Ireland Association of Cancer Registries aims to promote and develop cancer registration in England, Wales, Scotland, the Republic of Ireland and Northern Ireland. UKIACR aims to facilitate liaison between registries and stimulate the development of cancer registration and research based on cancer registry data.
Health Data Research Innovation Gateway
The Health Data Research Innovation Gateway provides a common entry point to discover and enquire about access to UK health datasets for research and innovation. It provides detailed information about the datasets, which are held by members of the UK Health Data Research Alliance, such as a description, size of the population, and the legal basis for access.
International Association of Cancer Registries (IACR)
The International Association of Cancer Registries holds a list of primarily for population-based registries from around the world.