Funding and Ethical Approval

Funding

The Candlelighters Trust has supported the work of the Yorkshire Register (YSRCCYP) since 1984 and has announced their continuation to do so until May 2025. In total, the register has received over in funding from the Candlelighters Trust.

The Laura Crane Youth Cancer Trust supported the running of the Register between 2017 – 2020.

For their various projects, members of the YSRCCYP team have received over £10 million in funding over the past 10 years.

Ethical Approval

The YSRCCYP has ethical approval from the Northern and Yorkshire Multi Centre Research Ethics Committee (MREC, REC Reference: 00/3/001) and approval under section 251 of the NHS Act (2006) for holding identifiable patient data from the Health Research Authority Confidentiality Advisory Group (CAG Reference 20/CAG/0133 – Amendment 15).

If you would like to learn more about your rights, how we use your data and your ability to opt out, please refer to our Privacy and Fair Processing Statement and our Opt-Out Policy.

The YSRCCYP is also overseen by a Scientific Advisory Group.